Desperately Seeking Kawasaki

 



Kawasaki Disease Resource List


Thanks for visiting the Desperately Seeking Kawasaki page on my blog.  This is where I keep an updated list of all the resources I can find about Kawasaki Disease (Kawasaki Syndrome).  If you have any information you would like to see added here, please contact me about it.  If you have a story to tell, leave it in the comments! The more information we have, the more people know about KD, the more kids we save! For more information on KD and to connect with other people affected by KD, please visit my Facebook page Desperately Seeking Kawasaki.   You can also follow me on Twitter at @seekingkawasaki

Table of Contents:
Kawasaki Disease - General Information
Kawasaki Disease - Specific Information
Recurrent Kawasaki Disease
Kawasaki Disease Foundations
Kawasaki Disease Organizations
Kawasaki Disease Projects and Research Studies
Hospital Kawasaki Disease Clinics and Programs
Personal Kawasaki Disease Websites and Blogs
The Grey Seeker's Posts about Kawasaki Disease
Facebook Pages Dedicated to Kawasaki Disease
Kawasaki Disease Facebook Groups
Kawasaki Disease on Twitter
Kawasaki Disease in the News
Personal KD Stories
Intravenous Immunoglobulin (IVIG) Information
Peer Reviewed Articles on Kawasaki Disease


Kawasaki Disease - General Information: 
Kawasaki Disease - Specific Information:
(These websites go into more specifics about KD.  They may be more geared towards medical personnel and their language may be a bit more technical.)  


Recurrent Kawasaki Disease
(I know, from personal experience, how hard it is to find information about recurrent KD.  That's why I've decided it deserves its own category.  All of the following articles, interviews, and blogs involve children who have had KD more than once.)
Kawasaki Disease Foundations: 



Kawasaki Disease Organizations: 



Kawasaki Disease Projects and Research Studies: 
(These are links to programs that are currently researching KD.  Some are currently seeking participants in their studies so KD survivors should check this out.)


Hospital Kawasaki Disease Clinics and Programs:
(Hospitals are now starting to offer specific and specialized treatment for KD.  Some of these hospital clinics and programs staff a KD Specialist 24 hours a day, who is available for physician-to-physician consultation, if acute KD is suspected.  Each of these clinics also has information for parents looking for a second opinion.) 


Personal Kawasaki Disease Websites and Blogs: 
(KD survivors and KD parents' personal experiences with KD.)


The Grey Seeker's Posts about Kawasaki Disease: 
(This is everything I've personally written about KD.)  


Kawasaki Disease Facebook Support Groups: 
Kawasaki Disease on Twitter:
Kawasaki Disease in the News - Scientific Advancement  
8 PGI doctors selected for ICMR awards for their research - See more at: http://www.indianexpress.com/news/8-pgi-doctors-selected-for-icmr-awards-for-their-research/1110371/#sthash.SAmSpuAU.cAOH9rU6.dpuf

KD in the News: Personal Interest

     Videos:


     Print & Web Stories:


Personal Stories:
(Blogs, web radio, and interviews.)

     Web Radio Interviews: 
KD in the News: Celebrity Sightings

Intravenous Immunoglobulin (IVIG) Information: 
(Information specific to this very important medication for Kawasaki Disease. Additional information can be found under Peer Reviewed Articles.)
Peer Reviewed Articles on Kawasaki Disease: 
(I try to always include the full-text unless it's not available.  If only the abstract is linked, it means you have to pay for the full-text.  Sometimes, to provide more information for the article, I have linked to the abstract, and you will find a link to the full-text from there.)

Published in 2013:


Published in 2012:


Published in 2011:



Published in 2010: 
Published in 2009:
Published in 2008:
Published in 2006:


Published in 2005:
Published in 2004:
Published in 2000:





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