Desperately Seeking Kawasaki

 



Kawasaki Disease Resource List


Thanks for visiting the Desperately Seeking Kawasaki page on my blog.  This is where I keep an updated list of all the resources I can find about Kawasaki Syndrome (Kawasaki Disease).  If you have any information you would like to see added here, please contact me about it.  If you have a story to tell, leave it in the comments! The more information we have, the more people know about KD, the more kids we save! For more information on KD and to connect with other people affected by KD, please visit my Facebook page Desperately Seeking Kawasaki.   You can also follow me on Twitter at @seekingkawasaki

Table of Contents:
Kawasaki Disease - General Information
Kawasaki Disease - Specific Information
Recurrent Kawasaki Disease
Kawasaki Disease Foundations
Kawasaki Disease Organizations
Kawasaki Disease Projects and Research Studies
Hospital Kawasaki Disease Clinics and Programs
Personal Kawasaki Disease Websites and Blogs
The Grey Seeker's Posts about Kawasaki Disease
Facebook Pages Dedicated to Kawasaki Disease
Kawasaki Disease Facebook Groups
Kawasaki Disease on Twitter
Kawasaki Disease in the News
Personal KD Stories
Intravenous Immunoglobulin (IVIG) Information
Peer Reviewed Articles on Kawasaki Disease


Kawasaki Disease - General Information: 
(Basic information about what Kawasaki Disease is, from medical and hospital websites.  If you are a parent or someone who needs to learn about Kawasaki Disease FAST, start here!)

Kawasaki Disease by Evans Surgery Center 
KD for Parents by Dr. Burns' Lab UCSD
Kawasaki Disease by MedlinePlus
Kawasaki Disease by MayoClinic.org
Kawasaki Disease by Seattle Children's Hospital
Kawasaki Disease by kidshealth.org
Kawasaki Disease by familydoctor.org
Kawasaki Disease by vaheart.com
Kawasaki Disease by American Heart Association 
Kawasaki Disease by University of Rochester Medical Center
Kawasaki Disease by Children's Hospital Colorado
Can you outgrow Kawasaki disease? CNN Health Expert Q&A. Updated October, 2011
Kawasaki Disease - PediaCast 203. Nationwide Children's. March, 2012

Kawasaki Disease - Specific Information:
(These websites go into more specifics about KD.  They may be more geared towards medical personnel and their language may be a bit more technical.)  

Delayed Diagnosis of Kawasaki Disease. Pediatric EM Morsels. September, 2013.
Kawasaki Disease: Do You Know the Signs? Slideshow by Medscape. September, 2013.
Kawasaki Disease by Patient.co.uk
Kawasaki Disease by NHS Choices (UK)
Kawasaki Disease by Medscape
Treating the Child with Refractory Kawasaki Disease by MedConnect
Kawasaki Disease by Online Mendelian Inheritance in Man (OMIM)
Kawasaki Disease by Genetics Home Reference
Kawasaki Disease by Immunopaedia
How 'bout them Steroids: The Role of Corticosteroids in Kawasaki Disease. Grand Rounds Presentation, University of Texas. March, 2013.


Recurrent Kawasaki Disease
(I know, from personal experience, how hard it is to find information about recurrent KD.  That's why I've decided it deserves its own category.  All of the following articles, interviews, and blogs involve children who have had KD more than once.)




Cardiac Sequelae in Recurrent Cases of Kawasaki Disease: A Comparison Between the Initial Episode of the Disease and a Recurrence in the Same Patients. Pediatrics. December, 1998.

Isaiah's Journey - Blog about a two-time KD survivor.

2 Time Kawasaki Disease Survivor (Interview).  Child Care Fusion BlogTalkRadio. April, 2013.

Kawasaki Disease: Answers and Awareness - Blog about a two-time KD survivor.

Kawasaki Disease Foundations: 

Kawasaki Disease Foundation
Kawasaki Disease Foundation Australia
Kawasaki Disease Foundation India
The Vasculitis Foundation
The Busey Foundation
The Busey Foundation Canada
Kawasaki Kids Foundation

Kawasaki Disease Organizations: 

Sarah Chalke's Kawasaki Disease Challenge on CrowdRise (Fundraiser for Diagnostic Test!)
The Faces of Kawasaki Disease
Kawasaki Disease Canada
Kawasaki Disease Fund
Kawasaki Support Group UK
Kawasaki Syndrom Forum (German)

Kawasaki Disease Projects and Research Studies: 
(These are links to programs that are currently researching KD.  Some are currently seeking participants in their studies so KD survivors should check this out.)

Dr. Burns' Kawasaki Disease Lab at University of California, San Diego
The Harvey Cohen Lab at Stanford University
Portman Research Group Kawasaki Disease Program at Seattle Children's Hospital
The Laboratory of Dr. Rae Yeung at Hospital for Sick Children, Toronto 
Kawasaki Disease Search on NIH ClinicalTrials.gov
Kawasaki Disease Research Project 

Hospital Kawasaki Disease Clinics and Programs:
(Hospitals are now starting to offer specific and specialized treatment for KD.  Some of these hospital clinics and programs staff a KD Specialist 24 hours a day, who is available for physician-to-physician consultation, if acute KD is suspected.) 

Kawasaki Disease Clinic at Rady's Children's Hospital, San Diego
Kawasaki Disease Program at Boston Children's Hospital
Center for Kawasaki Disease at Ann & Robert H Lurie Children's Hospital of Chicago
Kawasaki Disease Program at Nationwide Children's Hospital in Columbus, Ohio

Personal Kawasaki Disease Websites and Blogs: 
(KD survivors and KD parents' personal experiences with KD.)

Todd's Story
A Kawasaki Heart
Molly's Heart Story 
Evan's Updates
Cooper 5K & Fun Run
Motorcycles Don't Cause Kawasaki Disease
Isaiah's Journey


The Grey Seeker's Posts about Kawasaki Disease: 
(This is everything I've personally written about KD.)  

Dissecting Kawasaki Disease, Part 1: Misdiagnosis is Mandatory 
Closer to a Diagnostic Test for Kawasaki Disease
Grey's Anatomy Takes Kawasaki Disease To Heart
12 Ways to Help a Friend Survive the Hospital
Wordless Wednesday: What Kawasaki Disease Looks Like
Desperately Seeking Kawasaki Disease

Facebook Pages Dedicated to Kawasaki Disease:
Kawasaki Disease Foundation 
 
Kawasaki Disease Facebook Support Groups: 

Kawasaki In Canada (Open to Anyone)  

Kawasaki Disease on Twitter:
 
Kawasaki Disease in the News - Scientific Advancement  
8 PGI doctors selected for ICMR awards for their research - See more at: http://www.indianexpress.com/news/8-pgi-doctors-selected-for-icmr-awards-for-their-research/1110371/#sthash.SAmSpuAU.cAOH9rU6.dpuf








Young Calgary actor takes to YouTube to raise awareness for The Busey Family Foundation. Calgary Sun. May, 2013.











KD in the News: Personal Interest

     Videos:
     Print & Web Stories:

    Personal Stories:
    (Blogs, web radio, and interviews.)
         Web Radio Interviews: 

    Intravenous Immunoglobulin (IVIG) Information: 
    (Information specific to this very important medication for Kawasaki Disease. Additional information can be found under Peer Reviewed Articles.)




    (I try to always include the full-text unless it's not available.  If only the abstract is linked, it means you have to pay for the full-text.  Sometimes, to provide more information for the article, I have linked to the abstract, and you will find a link to the full-text from there.)

    Published in 2013:











    Published in 2012:








    Published in 2011:
     










    Long-Term Prognosis of Patients With Kawasaki Disease Complicated by Giant Coronary Aneurysms. American Heart Association Circulation. April, 2011.

    Published in 2010: 



    Published in 2009:







    Published in 2008:



    Published in 2006:

    Hair loss as a sign of Kawasaki disease. Iranian Journal of Allergy, Asthma, and Immunology (Abstract Only). December, 2006.

    Cervical Spine and Temporomandibular Joint Arthritis in a Child With Kawasaki Disease. Pediatrics. November, 2006.




    Published in 2005:



    Published in 2004:





    Published in 2000:

     





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